Danny is continuing to improve every day! This past weekend we felt more like a family than we have in months. We traveled to out of town together - YES all of us. Summer had a softball tournament in Kinston and Danny was able to join us. This was a fun time for all of us. Summer's ball team played very well and they had a great time with a HUGE trunk or treat event.
We packed Danny's medicine in a cooler but left the TPN behind. We decided that we would skip the feeding just for one night. This weekend he was able to eat some real food... he started out with a baked potato and all went well so Danny decided he would try to eat more of a variety of food. He was able to eat a Subway sandwich, a waffle, a portion of a personal pizza and a chicken pot pie. He is so excited!
He is still taking the medicine on the same schedule as when we left the hospital. A couple of times he has tried to stretch out the time in between or just do without a medicine completely only to realize how much each of them are helping him. We have only had to use the Phenergan about 5 times so that is pretty good. He has reached a milestone... no more "do rag" or "pinky". He has been able to give up the wet cloth on his head and the pink puke basin that was a form of security.
Yesterday Danny was not feeling great so he did take the Phenergan and slept most of the day away. But today was a good day. Danny had his follow up appointment with Dr. Anagnost today. Because Danny is doing so good the PA asked him to cut back on the Marinol dosage and spread out the dosage on the Reglan to take it only 3 times a day instead of the 4. Otherwise, all other meds will remain the same including the IV Zophran. The greatest news today... no more TPN!!!! Hallelujah!!! Because Danny is eating so well the PA felt it was a good idea to stop the TPN feeding. Wow, what an improvement.
Danny was supposed to have his first scan the first part of December but they decided to move it up. He will have his first scan sometime within the next two weeks because he has started having chest pain again. Unfortunately, it is the same kind of pain that started this whole journey. It is not severe but it does hurt to breathe in, cough, sneeze and sometimes when he is laying down. Naturally we are concerned. The PA was pretty concerned too so she and Dr. A made the decision not to wait for the test. Of course, we started thinking maybe we shouldn't have dropped the last treatment. Hopefully, the results of the tests will be good. We ask that you continue to pray for Danny for complete healing. The thought of possibly having to go through more treatment is very daunting. However, we are going to keep a positive mindset until we know what to expect.
When we left the doctors office today we stopped at Merritts Burger house for lunch. I love their cheeseburgers and crinkle fries... throw in a cold Sun-drop and you have the perfect meal! Danny was able to eat a cheeseburger with chili and some fries, what a milestone. We are enjoying these wonderful days... and are looking forward to many more to come.
Thanks to everyone for taking the time to pray, for sending your notes of encouragement, your phone calls, emails, & visits. Many of you have sacrificed so much on behalf of our family - we are so very grateful for each of you! Thank you for loving our family during this tough time.